Research Areas
Explore the different innovative research areas at the Centre for the Acceleration of Rare Disease Trials
Equality Diversity & Inclusion
Assoc. Prof Ameeta Retzer
We will focus on improving trial participation in underserved communities at the trail design level, by an equitable implementation of research findings and embedding EDI principles throughout the Centre’s work.
Read more
Implementing Innovation in NHS
Prof Amy Jayne McKnight
Using health economic data collection to support regulatory approval, we will seek to break down barriers in the NHS around rare disease therapies, whilst working with international partners.
Read more
Patient & Public Involvement & Engagement
Dr Pauline McCormack
We are ensuring patients and families are at the heart of the Centre’s work by engaging with the RD community, listening and taking action on their experience at all levels.
Read more
Patient Reported Outcomes
Assoc. Prof Olalekan Lee Aigegbusi
This area focuses on advancing patient focused therapy development in rare disease by appropriately incorporating user perspectives to develop a PRO support service for trial design.
Read more
Training & Capacity Building
Assoc. Prof Martin Higgs
Here we are committed to establishing a future generation of rare disease researchers by enhancing early career opportunities and delivering cross disciplinary training.
Read more
Interested in working with the team?
We are always looking for talented researchers, clinicians, and industry partners to join our efforts in accelerating rare disease trials. Whether you’re interested in research collaboration, clinical trial design, or patient engagement, we’d love to hear from you.