In collaboration with the Trial Design research area, we will implement decentralised trial models, enabling more patients to participate without extensive travel. Additionally, we will introduce a carer support programme to assist patients participating in trials away from home, ensuring a patient-friendly trial experience. This work will also involve policy-level engagement with the NHS and the NIHR Research Delivery Network, updating national research agreements to accommodate low-intensity intervention studies, further broadening trial accessibility.
By September 2027, we aim to have at least four geographically distributed sites working collaboratively on training and recruitment, setting an exemplar model for rare disease trials. The first decentralised clinical trial is targeted for recruitment by March 2029, ensuring a sustainable, patient-focused trial infrastructure that delivers new therapies more efficiently across the LifeArc Translational Challenge for Rare Disease.
We are always looking for talented researchers, clinicians, and industry partners to join our efforts in accelerating rare disease trials. Whether you’re interested in research collaboration, clinical trial design, or patient engagement, we’d love to hear from you.
