How to get involved
We invite patients, caregivers, researchers and industry partners to join us un shaping the future of rare disease trials.
We believe collaboration is key to accelerating rare disease research. Whether you're a researcher, patient, or industry partner, there are many ways to get involved and make a difference.
For Patients & Public
Your voice matters in rare disease research. Patients, caregivers, and the public play a vital role in shaping the direction of research and ensuring trials are patient-centred. There are various was to be a part of this transformative work, including:
- Joining the LEAP (Lived Experience Advisory Panel): Help guide research priorities and decision-making.
- Participate in Clinical Trials: Contribute your insights and experiences to help shape new treatments.
- Stay Informed: Keep up to date with the latest news from LEAP and our patient-focused activities.
For Researchers
We welcome researchers from across the globe to collaborate with us in accelerating rare disease trials. From designing clinical studies to advancing trial methodologies, there are numerous ways you can contribute to our mission.
- Collaborate on Research Projects: Work with leading experts to design innovative trials.
- Access Resources & Expertise: Take advantage of our infrastructure and guidance in trial design, data analysis, and more.
- Stay Updated with Training & Events: Join our workshops, webinars, and networking events.
- Job & PhD Applications: Explore exciting career opportunities and PhD programmes in rare disease research.
For Industry Partners
Industry partnerships are key to turning groundbreaking research into real-world treatments. If you’re a biotech, pharma, or medtech company, there are various ways you can work with us to accelerate the delivery of innovative therapies for rare diseases.
- Partner on Clinical Trials: Collaborate on the design, execution, and analysis of rare disease trials.
- Access Funding & Regulatory Support: Benefit from our experience in navigating regulatory landscapes and securing funding for innovation.
- Engage with Our Network: Connect with other industry leaders and academic experts to advance the field.
