We are excited to announce that applications are now open to join the Lived Experience Advisory Panel (LEAP) for the Rare Disease Translational Acceleration Platform (RD-TAP) project! This is a unique opportunity to help guide and shape the future of rare disease research, clinical trials, and patient engagement.
The LEAP will be an essential voice in co-creating processes to make research participation easier and fairer, developing better pathways to bring effective therapies to those in need, and advocating for equitable opportunities for patients across the UK.
We welcome applications from:
- People living with a rare condition
- Parents or carers of individuals with rare conditions
- Representatives of rare disease advocacy organisations
If you are passionate about influencing the future of rare disease research and ensuring that patient perspectives are at the heart of decision-making, we would love to hear from you!
View our advert here to find out more
Join Our Webinar – Learn More & Ask Questions
Want to find out more and have your questions answered? Join us on 28th March 12pm-1pm GMT for a webinar where we’ll provide an overview of LEAP, the application process, and what to expect as a panel member.
Register for the webinar here
Apply Now
To apply, complete the application form from the link here!
Application Deadline : 11th April 2025
Need Help Completing Your Application?
We are committed to making the application process as accessible as possible. If you need support, you can contact us at 07749126932 for assistance.
For all other queries, please contact us via the contact us form or email. We look forward to receiving your application!
